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LRB-4340/1
CMH:emw
2021 - 2022 LEGISLATURE
October 6, 2021 - Introduced by Representatives Shelton, Bowen, L. Myers,
Stubbs, Drake, Behnke, Steffen, Andraca, Baldeh, Cabral-Guevara,
Conley, Considine, Dittrich, Hebl, Hesselbein, B. Meyers, Milroy, Moore
Omokunde
, Neubauer, Penterman, S. Rodriguez, Shankland, Sinicki,
Snyder, Spiros, Spreitzer, Subeck, Vining and Vruwink, cosponsored by
Senators Johnson, Agard, Bewley, Larson and Roys. Referred to Committee
on Rules.
AJR82,1,1 1Relating to: recognizing September as National Sickle Cell Awareness Month.
AJR82,1,32 Whereas, more than 100,000 people in the United States and approximately
3800 Wisconsinites are battling sickle cell disease; and
AJR82,1,74 Whereas sickle cell disease almost exclusively affects communities of color,
5affecting 1 in 365 newborn African American infants and 1 in 16,300 newborn
6Hispanic American infants, and can be found in individuals of Mediterranean,
7Middle Eastern, Asian, and Indian origin; and
AJR82,1,98 Whereas, more than 3,000,000 individuals in the United States have the sickle
9cell trait, and 1 in 13 African Americans carries the trait; and
AJR82,1,1110 Whereas, there is a 1 in 4 chance that a child born to parents who both have the
11sickle cell trait will have the disease; and
AJR82,1,1412 Whereas, sickle cell disease is an inherited, debilitating red blood cell disorder
13in which red blood cells are abnormally shaped, which restricts the flow in blood
14vessels and limits oxygen delivery to the body's tissues; and
AJR82,2,2
1Whereas, sickle cell disease often result in bouts of severe pain, anemia, stroke,
2organ damage, and early death; and
AJR82,2,43 Whereas, as the most common inherited blood disorder in the United States,
4sickle cell disease is passed on to children from parents through genes; and
AJR82,2,65 Whereas, sickle cell disease patients often experience significant barriers and
6discrimination when seeking and accessing lifesaving treatments; and
AJR82,2,117 Whereas, since the 1970s, there have been limited advances in the care and
8treatment of the disease. With no universal cure for sickle cell disease, many patients
9rely on frequent blood transfusions to manage their symptoms. Many of these
10transfusions require up to 10 units of blood every month, which requires up to 20
11donors for one patient; and
AJR82,2,1612 Whereas, blood centers operating in the state of Wisconsin, including American
13Red Cross, Blood Center of Northcentral Wisconsin, The Community Blood Center,
14Rock River Valley Blood Center, and Versiti Blood Center of Wisconsin, play a critical
15role in the treatment of sickle cell disease by supplying lifesaving blood for
16transfusions; and
AJR82,2,2017 Whereas, Wisconsin health care providers at organizations such as Froedtert
18and the Medical College of Wisconsin Froedtert Hospital, Children's Hospital of
19Wisconsin, and Versiti provide world-class care to sickle cell patients across the
20state; and
AJR82,2,2421 Whereas, Wisconsin researchers at organizations such as the Medical College
22of Wisconsin, Marquette University, and the University of Wisconsin-Madison
23conduct research on treatments and psychosocial interventions to ease the burden
24of sickle cell disease on those affected; and
AJR82,3,5
1Whereas, Wisconsin representatives of professional organizations such as the
2American Society of Hematology (ASH) and the International Association of Sickle
3Cell Nurses and Professional Associates (IASCNAPA) work to improve the outcomes
4for individuals living with sickle cell disease through advocacy, care, education, and
5research; and
AJR82,3,96 Whereas, the recognition of National Sickle Cell Awareness Month as well as
7health care delivery services for individuals living with sickle cell disease can
8support the transition for adolescents from pediatric to adult health care to improve
9patient health outcomes and save lives; and
AJR82,3,1210 Whereas, lack of preventative research investment and funding results in a
11lack of both short- and long-term sickle cell patient outcomes in overall health and
12well-being; now, therefore, be it
AJR82,3,15 13Resolved by the assembly, the senate concurring, That the members of the
14Wisconsin Legislature join in recognizing September as National Sickle Cell
15Awareness Month; and, be it further
AJR82,3,20 16Resolved, That the members of the Wisconsin Legislature encourage the
17people of Wisconsin to hold appropriate programs, events, and activities during
18National Sickle Cell Awareness Month to raise public awareness of preventative care
19programs, treatments, and other patient services for those living with sickle cell
20disease.
AJR82,3,2121 (End)
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