SJR91: Joint Resolution Text

LRB-5322/1

CMH:skw

2019 - 2020 LEGISLATURE

2019 Senate JOINT RESOLUTION 91

February 6, 2020 - Introduced by Senators Erpenbach, Jacque, Carpenter, Ringhand, Schachtner and L. Taylor, cosponsored by Representatives Sargent, Tranel, Crowley, Hebl, Hesselbein, Kulp, Ohnstad, Rohrkaste, Shankland, Sinicki, Spreitzer, Stubbs, C. Taylor, Tusler, Vruwink and Zamarripa. Referred to Committee on Senate Organization.

SJR91,1,1 Relating to: recognizing February as Noonan Syndrome Awareness Month.

SJR91,1,3 Whereas, Noonan Syndrome is a rare and life-altering syndrome that affects one out of every 1,000 to 2,500 births annually; and

SJR91,1,5 Whereas, Noonan Syndrome is a genetic disorder that prevents normal developments in various parts of the body; and

SJR91,1,8 Whereas, a person can be affected by Noonan Syndrome in a wide variety of ways, including unusual facial characteristics, short stature, heart defects, and other physical problems and possible developmental delays; and

SJR91,1,12 Whereas, Noonan Syndrome can cause life-threatening medical issues including but not limited to congenital heart defects, lymphatic abnormalities, predisposition to cancers, frequent illnesses and infections, and autoimmune disorders; and

SJR91,1,15 Whereas, Noonan Syndrome can cause life-changing developmental or medical disabilities including but not limited to hearing loss, autism, seizures, hypotonia, chronic pain, and connective tissue disorders; and

SJR91,2,3 Whereas, numerous people who are affected by Noonan Syndrome lack a proper support system due to a lack of awareness about the syndrome, making it difficult to find fellow members of society who are also affected by Noonan Syndrome; and

SJR91,2,7 Whereas, those affected by Noonan Syndrome are strong people whose bravery is worth being recognized by our state, and by shedding light on and increasing community awareness about this life-altering condition we can better support Wisconsin residents and their families who are impacted by Noonan Syndrome; and

SJR91,2,9 Whereas, awareness and education are absolutely crucial to supporting those impacted by Noonan Syndrome in our state; and

SJR91,2,11 Whereas, bringing awareness to this condition helps the Noonan community work to find effective treatments that help in easing life with Noonan Syndrome; and

SJR91,2,15 Whereas, Noonan Syndrome Awareness Month provides Wisconsin with an opportunity to learn more about this syndrome while providing those impacted by Noonan's with a platform to share their stories, build relationships, and receive the resources and support that they need; now, therefore, be it

SJR91,2,18 Resolved by the senate, the assembly concurring, That the Wisconsin State Legislature does hereby recognize February as Noonan Syndrome Awareness Month.

SJR91,2,19 (End)