February 3, 2025 - Introduced by Representatives Dittrich, Armstrong, Arney, Bare, Brown, Fitzgerald, Green, Gundrum, Hong, Hysell, Kirsch, Krug, Madison, Mursau, Nedweski, Novak, O'Connor, Ortiz-Velez, Palmeri, Phelps, Sinicki, Snodgrass, Subeck, Taylor, Tenorio, Tusler, J. Jacobson and Vining. Referred to Committee on Rules.
AR3,1,1
1Relating to: observing February 28, 2025, as Rare Disease Day in Wisconsin. AR3,1,42Whereas, there are nearly 10,000 diseases and conditions considered rare 3(each affecting fewer than 200,000 Americans) in the United States, according to 4the National Institutes of Health (NIH); and AR3,1,65Whereas, while each of these diseases may affect small numbers of people, 6rare diseases as a group affect approximately 25 to 30 million Americans; and AR3,1,87Whereas, many rare diseases are serious and debilitating conditions that have 8a significant impact on the lives of those affected; and AR3,1,129Whereas, while more than 800 drugs and biologics have been approved for the 10treatment of rare diseases according to the Food and Drug Administration (FDA), 11millions of Americans still have rare diseases for which there is no approved 12treatment; and AR3,2,213Whereas, individuals and families affected by rare diseases often experience
1problems such as diagnosis delay, difficulty finding a medical expert, and lack of 2access to treatments or ancillary services; and AR3,2,63Whereas, while the public is familiar with some rare diseases, many patients 4and families affected by less widely known rare diseases bear a large share of the 5burden of funding research and raising public awareness to support the search for 6treatments; and AR3,2,87Whereas, residents of Wisconsin are among those affected by rare diseases 8because nearly one in 10 Americans have rare diseases; and AR3,2,119Whereas, the National Organization for Rare Disorders (NORD) is organizing 10a nationwide observance of Rare Disease Day on February 28, 2025; now, therefore, 11be it AR3,2,1312Resolved by the assembly, That February 28, 2025, will be observed as Rare 13Disease Day in Wisconsin.
