SB592: Bill Text

LRB-4718/1

TJD:skw

2021 - 2022 LEGISLATURE

2021 Senate BILL 592

October 4, 2021 - Introduced by Senators Testin, Jagler, Bernier, Bradley, Cowles, Kapenga, LeMahieu, Nass, Roth and Wanggaard, cosponsored by Representatives Dittrich, Allen, Callahan, Gundrum, Katsma, Knodl, Krug, Kuglitsch, Loudenbeck, Mursau, Penterman, Plumer, Rozar, Schraa, Spiros, Summerfield, Tusler and Edming. Referred to Committee on Health.

SB592,1,2 An Act to create 253.135 of the statutes; relating to: congenital condition educational resources.

Analysis by the Legislative Reference Bureau

This bill requires physicians who administer a prenatal or postnatal test for a congenital condition and receive a positive test result to ensure the parent or expectant parent of the child with the positive test result receives certain educational resources on the congenital condition made available by the Department of Health Services. The educational resources may be provided electronically, or, if the parent or expectant parent prefers, physically. The educational resources that DHS must make available on its Internet site must include certain current, evidence-based information about the congenital condition that has been reviewed by medical experts and national organizations specializing in the congenital condition specified in the bill and supportive information relevant to the congenital condition that includes contact information as specified in the bill. The bill requires DHS to review and, as appropriate, update the educational resources with information from new studies and research. The bill also requires DHS to provide the educational resources in, at least, English and in Spanish and Hmong translations.

For further information see the state fiscal estimate, which will be printed as an appendix to this bill.

The people of the state of Wisconsin, represented in senate and assembly, do enact as follows:

SB592,1 Section 1. 253.135 of the statutes is created to read:

SB592,2,2 253.135 Congenital conditions. (1) Definitions. In this section:

SB592,2,5 (a) “Congenital condition” means a genetic or other congenital disease or condition, including Down syndrome, that is capable of being detected through in utero diagnosis.

SB592,2,7 (b) “Down syndrome" means a genetic condition caused by cell division that results in the presence of an extra whole or partial copy of chromosome 21.

SB592,2,15 (2) Requirement to provide educational resources. Any physician who administers a prenatal or postnatal test for a congenital condition and receives a positive test result for a congenital condition shall ensure that the parent or expectant parent of a child with the positive test result receives all of the educational resources described under sub. (3). The educational resources may be provided electronically by electronic mail or another digital or electronic means of communication or, if the parent or expectant parent prefers, physically by a copy of the resources obtained from the department's Internet site.

SB592,2,18 (3) Educational resources. (a) The department shall make available to physicians described in sub. (2) through a link on its Internet site educational resources on the congenital condition that include all of the following:

SB592,2,21 1. Current, evidence-based information about the congenital condition that has been reviewed by medical experts and national organizations specializing in that congenital condition and that contains all of the following:

SB592,2,23 a. Possible physical, developmental, educational, and psychosocial outcomes of the congenital condition.

SB592,2,24 b. Life expectancy for individuals with a diagnosis of the congenital condition.

SB592,2,25 c. Clinical course of the congenital condition.

SB592,3,2 d. Intellectual and functional development for individuals with a diagnosis of the congenital condition.

SB592,3,3 e. Treatment options for the congenital condition.

SB592,3,5 f. Any other information related to the congenital condition the department determines is necessary.

SB592,3,7 2. Supportive information relevant to the congenital condition that includes contact information for all of the following:

SB592,3,8 a. Informational hotlines specific to the congenital condition.

SB592,3,9 b. Relevant resource centers.

SB592,3,10 c. National and local organizations with a focus on the congenital condition.

SB592,3,11 d. Educational and support programs.

SB592,3,15 (b) The department shall periodically review the educational resources under par. (a) 1. and 2. and, as appropriate, shall update the educational resources with information from new studies or research that is released or discovered related to congenital conditions.

SB592,3,17 (c) The department shall provide the educational resources under par. (a) 1. and 2. in, at least, Spanish and Hmong translations in addition to English.

SB592,3,18 (End)